Health3 sources
Patient Struggles to Opt Out of Health Data Sharing in Virtual Appointments
- Dr. Shira Fischer, a health policy physician, sought a speech pathologist for her child in 2022.
- The consent form indicated the appointment could be recorded and used for training, which Fischer objected to.
- Despite being told she could opt out, Fischer found the process to be frustrating and complex.
- The hospital did not honor its own policies, and staff provided incorrect information.
- The investigation was co-published by CalMatters, The Markup, and STAT.
Articles (3)
STAT·
Opinion: MyChart said I could opt out of sharing my health data. Figuring out how was maddening
The Markup·
MyChart and a major hospital said I could opt out of sharing my health data. But they didn’t make it easy
CalMatters·
MyChart and a major hospital said I could opt out of sharing my health data. But they didn’t make it easy